Journal of Blood Disorders & Transfusion

Marilyn Kacica

Publications

• Research Article
  Transition to Adult Care: A Statewide Survey among Pediatric Hemoglobinopathy Specialty Centers in New York
  Author(s): Ying Wang, Keewan Kim, Katherine Harris, Geraldine Roth, Christopher Kus, Marilyn Kacica and Michele CagganaYing Wang, Keewan Kim, Katherine Harris, Geraldine Roth, Christopher Kus, Marilyn Kacica and Michele Caggana
  
  Background: Transition from pediatric to adult medicine for young adults with special health care needs to be performed in an uninterrupted, patient-centered and comprehensive manner. In order to assess the health care status of children with hemoglobinopathies and identify plans and barriers in transition from pediatric to adult care, we conducted a statewide survey among hemoglobinopathy specialty care centers that receive newborn screening referrals. Methods: An invitation via email with a link to the web-based survey containing 16 questions regarding transition to adult care was sent to center directors of all 33 hemoglobinopathy specialty care centers in New York State. Non-responders were contacted and asked to complete the survey over the phone. Results: Overall, 28 (85%) of 33 centers completed the survey. Adult care was provided in all responding centers; 39% had transition p.. View More»
  DOI: 10.4172/2155-9864.1000169

  Abstract PDF