Autism-Open Access

Autism-Open Access
Open Access

ISSN: 2165-7890

+32-466902147

Abstract

Seeking Patient-and Family-Centered Care: The Experiences of Families of Children with an Autism Spectrum Disorder

Jennifer Kouo*

Children with an autism spectrum disorder (ASD) have a higher annual mean number of total clinic, pediatric,
and psychiatric outpatient visits, and inpatient and outpatient hospitalizations when compared to children without
ASD. Families of individuals with ASD observe and experience specific barriers to medical care. Using a mixedmethods
approach and interpretive phenomenological analysis (IPA), the perspectives of 40 families were gathered
through a survey to gain a better understanding of positive and negative experiences, and the implications for
healthcare providers and medical settings. Among the themes identified, families shared the need for healthcare
providers to be more knowledgeable and trained about the heterogeneity of ASD, to presume competence and to
view families as allies in facilitating medical encounters. As a result of these improvements, families also hope that
healthcare providers develop greater compassion for families of children with ASD.

Published Date: 2020-02-02; Received Date: 2019-11-15

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